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May is Neurofibromatosis (NF) Awareness Month
What is NF, and how does Children's Tumour Foundation help people with the condition?
The Children’s Tumour Foundation (CTF) is the only patient advocacy and support service for kids, adults and families impacted by neurofibromatosis (NF); a complex, unpredictable and progressive genetic condition that causes tumours to form on nerves.
Highly variable, NF can lead to a range of significant health issues such as deafness, blindness, physical differences, bone abnormalities, learning difficulties, chronic pain and even cancer. NF can affect anyone regardless of ethnicity or gender, and roughly half of all cases arise in families with no history of the condition. The NF journey from diagnosis to treatment is challenging and most of what people will experience is unknown. No one should face NF tumours alone. The Children's Tumour Foundation provide free services to the NF community, while advocating for change and investing in research.Card.Gift x CTF
We have worked with CTF to unveil two new Card.Gift cards:
Children's Tumour Foundation - Card.Gift
This unique design created by Sylvia Eng comes off the back of being selected as the winner of a drawing competition hosted by CTF amongst the NF community. In keeping with the penguin theme (CTF's logo), the illustration shows several cheeky penguins, each with their own unique style and personality.
NF Awareness - Card.Gift
Featuring smiling friends of the NF community is Lyla (left), Ruth (middle) and Alex (right). They are now fast friends and forever connected by their condition. Ruth is Head of Support Services and a big part of the role CTF plays in ensuring that anyone who connects with them, knows that they have all the support they need!
For the month of May, we will be donating a portion of sales generated from these cards to CTF, in aid of their efforts to support the NF community. Every 3 days a child is born with NF in Australia, and they will need a lifetime of support. NF is obscure, yet prevalent and there’s more work to be done to improve awareness, diagnosis, and support pathways. Check out the cards here!
